i've already said "i dont know what to say" plenty of times. this is no exception. I'm really glad you're still hanging in here and I hope any throat swelling and whatnot is just a psychological symptom.

I wish I could find a way to help you or find you a doctor who could help, but I really don't know the first thing about Testicular Cancer. The closest I can get is some WORDS from my vertebrate cell biology class about potential methods/drugs to prevent the spread of tumors:


None of this is specific to testicular cancer. It's just based off of the concept that tumors need a blood supply to grow, proliferate, and spread throughout the body. They usually take advantage of some mutation to make new blood vessels grow right next to them. Basically, if we can find an effective drug to limit/inhibit angiogenesis (formation of blood vessels), we might be able to stop tumor growth. There's been many inhibitors identified, but I have no idea what their research status is.

I can't help you in terms of finding a new doctor. I can only wish you good luck

Like ase said 'i dont knwo waht to say' comes into play here, but you have everyones support you know that. I'm not religious but i will pray for you again. good luck man..

I'm an extreme pessimist (pessimism while fall down mountain) but I don't htink you're going to die. This is a pretty worthless post

okay so after a pretty restless night and some thinking here's what I'm thinking about.

first off I'm going to obviously stay on these pills as long as they keep working. I don't know IF they're working, which is of course a little distressing, but I can't help but feel even without a cure rate, they're expected to at least remiss the damn thing. that one anecdote about two years is a pretty long time for just pills.

the second thing is I think I'm going to look for a doctor who will be willing to do the high dose chemo regime anyways. Einhorn may disagree but I'm looking around and the people that seem to survive this, CURE this, DINESH, it's the high dose chemo. I'm supposedly not responsive to it for some reason, but I need to be, man. like LOOK at this shit Dinesh did:

Carboplatin
Etoposide (VP-16)
Cyclophosphamide
Paclitaxel
Mesna

I've done one of those only. that's high dose chemo drugs, why won't ANY of those work for me?

Basically I know there's a risk high dose chemo might kill me earlier but I'm weighing that risk against not dying at all. Dinesh has been around for over ten years, he's cured. the difference seems to be the brain met, but man they're all dead. how can that matter so much ffff.

it's gotta be something in the pathology report but even then I can't ACCEPT that man. there's gotta be something I can do.

http://www.mskcc.org/prg/prg/bios/62.cfm this guy made the high dose chemo regime. however everything i'm reading keeps saying SOMETIMES NOT VIABLE.

why! and if it isn't what am I doing next?

I hate not knowing this stuff.

here are the dokmartini things i'm looking at:

http://cancerguide.org/psk.html
http://cancerguide.org/btc.html

and shark cartilage which is like the bovine one.

BOTTOM OF THE FUCKIN BARREL.

Man that high dose chemo is going to be brutal I bet. Like for sure you can deal but ouch. You should definitely pester einhorn without your mum looking distraught for WHY you wouldn't be responsive to it but at this stage it's probably worth a go even if it's not effective on brown people.

Also munch on a spirulina

you joke about spirulina but that was back when we were aiming for cure still. I'll probably get on every herbal remedy I can soon.

that PSK drug looks like the real deal to me. It's a big think in Japan and China and apparently has anti-tumorgenic power on a variety of cancers. also:

PSK is not only capable of stimulating the immune system but also modulating tumor cell function and the tissue environment to facilitate the local destruction of tumour cells by activated immune effector cells. For example, PSK was reported to suppress tumor-induced angiogenesis

this is what i was talking about in my previous post, which is pretty cool.

PSK has nothing about non-seminatomous SP whatever germ cell tumors though.

OH YOU'VE GOT TO BE KIDDING: http://www.jhsnp.com/store/coriolusmushrooms.html

We are out of stock of Coriolus mushrooms
until further notice.

AHHH FUCK.

someone find some place selling these that's legit!

http://www.jhsnp.com/store/coriolus_super_strength.html NEVER MIND

also you might want to look at this if you havent already: (its an einhorn + co study)

http://www.medicinenet.com/script/main/art.asp?articlekey=82820 - media report
http://content.nejm.org/cgi/content/abstract/357/4/340 - published article


you originally got cisplatin, right?

i feel stupid saying this but... since einhorn is a BIG GUY in the cancer world, maybe there's a chance he's using you as a control patient in some study without telling you. it sounds ridiculous, but from that NEJM article, it sounds like high-dose chemo has very high chances of curing your cancer.

that seems really unethical. I don't think he can do that.

it would also be GREAT if he was though because it would mean some other dude would be like NAH I'LL TAKE YOU INSTEAD but no I don't think he can do that can he?

well yeah. it's ridiculously unethical. its a CONSPIRACY THEORY if you will, despite the fact that I know nothing about the guy.

but yeah. i would try and find someone with good credentials willing to give you t he high-dose chemo regime + bone marrow stem cell treatment

my guess btw is those three people who died shared something with me, which is why he doesn't want to do it.

but i can't help but be like 3 out of 90 something, this is better than my ZERO right now! also

im me!

drug overdose aint gonna kill peo...

like that's such a dumb way to think but THINK HARD: if there is one GW member you could say I WILL GIVE CANCER TO BECAUSE IF THERE IS A STUBBORN SON OF A BITCH WHO WILL LIVE THROUGH IT IT IS THIS PERSON it is me. that's like my best and worst trait right there, NEVER SAY DIE ("your stupid an a babby killer and now uve lost ur argument lmao").

I dunno this high dose seems like such a great option and I don't like that I'm not doing it. I was kind of placid about it before when I thought these pills were a good thing but fuck it I don't want to prolong life, I want to live.

don't die!! it really feels awful to see someone saying they're dying. this whole thing sucks. i hope you'll make it. this cancer is stubborn but it's not as stubborn as you so you'll beat it. live, steel.

those of you who are interested; I've posted a link in AM of a slightly medically herbal remedy thing that is like 300 pages of scientific jargon I'm honestly not able to get through, but maybe...u can help.

also yeah I'm gonna get those shroom pills, fuck it. can't HURT at this point.

goddammit I hope some oncologist gives me high dose.

look steel just talkin about what you think doktormartini might suggest is beside the point. its time to go to the source. doktormartini's internet grandma.

steel can we use your body as a playground for illicit substances

http://www.mskcc.org/prg/prg/bios/62.cfm this guy made the high dose chemo regime. however everything i'm reading keeps saying SOMETIMES NOT VIABLE.

why! and if it isn't what am I doing next?

I hate not knowing this stuff.

here are the dokmartini things i'm looking at:

http://cancerguide.org/psk.html
http://cancerguide.org/btc.html

and shark cartilage which is like the bovine one.

BOTTOM OF THE FUCKIN BARREL.

Don't do shark cartilage that is worthless, even coming from me.  At least with spirulina there are studies showing it inhibited cancer growth (in animals) and prevented oral carcinogensis (in humans), but with shark cartilage I don't think there are any studies showing anything like that.
http://www.cancer.org/docroot/NWS/content/NWS_3_1x_Shark_Cartilage_Supplements_Have_No_Effect.asp


Also, I'm really sorry to hear this, I wish you all the best.

oh hey before you start into alternative therapies check out the proposed method of action! your taxxol pills work by encouraging the growth of cell structures so much they can't function, other drugs usually work by destroying the cell structures. if you try both you may just balance it out!